hrp0098p2-133 | Fetal, Neonatal Endocrinology and Metabolism | ESPE2024

Experiences of infant feeding in congenital hyperinsulinism: a thematic analysis

Ginbey Eleanor , Worth Chris , Otabor Osarugue , Hall Caroline , Gilligan Niamh , Auckburally Sameera , Worthington Sarah , O'Shea Elaine , Salomon Estebanez Maria , Nikiforovski Ana , Banerjee Indi

Background and aims: Congenital hyperinsulinism (CHI) is a rare condition causing severe and recurrent hypoglycaemia in children. Feeding is a key aspect of glucose delivery; however, with severe illness causing nausea and frequent use of parenteral and non-oral feeding, infants with CHI often develop a range of feeding problems. Previous studies have shown persistence of feeding problems in this group but there is limited data on families’ experiences and per...