hrp0098p3-3 | Adrenals and HPA Axis | ESPE2024

Towards Universal Congenital Adrenal Hyperplasia Newborn Screening in Indonesia: Knowledge, Perspectives and Experience of Pediatric Residents and Pediatricians

Utari Agustini , Arnetta Puteri Helena , Nur Insani Annisa , Herqutanto Herqutanto , Fadiana Ghaisani , Stafford Diane , Chanoine Jean-Pierre , Pulungan Aman

Introduction: As Indonesia begins implementing newborn screening (NBS) for congenital adrenal hyperplasia (CAH), pediatricians must be prepared to promptly and correctly diagnose and manage CAH. The aimof this study was to explore the knowledge, perspectives and experience of Indonesian pediatricians and pediatric residents regarding CAH.Methods: A cross-sectional electronic survey via Google Form was disseminated during...

hrp0098p3-4 | Adrenals and HPA Axis | ESPE2024

Bridging Gaps in Congenital Adrenal Hyperplasia Care: Insights from General Practitioners' Knowledge, Attitudes, and Experiences in Indonesia

Arnetta Puteri Helena , Nur Insani Annisa , Herqutanto Herqutanto , Fadiana Ghaisani , Stafford Diane , Chanoine Jean-Pierre , Utari Agustini , Pulungan Aman

Introduction: General practitioners (GP) are often the first point of contact for patients presenting with symptoms of congenital adrenal hyperplasia (CAH). With a limited number of pediatricians and pediatric endocrinologists as well as the upcoming universal implementation of CAH newborn screening (NBS) in Indonesia, the role of GPs in the diagnosis and emergency management of CAH cannot be overstated. This is the first study to explore the knowledge, attitu...

hrp0097p1-8 | Adrenals and HPA Axis | ESPE2023

Congenital Adrenal Hyperplasia (CAH): Situation and Possibility to Develop a Newborn Screening in Indonesia -- An Exploratory Study

Pulungan Aman , Armstrong Kate , Fadiana Ghaisani , Idaayen Fatima , Waladhiyaputri Vahira , Patricia Chandra Angelina , Fadia Ratnasari Amajida , Arnetta Puteri Helena , Utari Agustini

Introduction: Indonesia, an archipelago with approximately 17,000 islands and 34 provinces has around 4.8 million babies born annually, yet only 2-3% undergo newborn screening (NBS) resulting in high preventable disease burdens. Currently, the country only has 1 newborn screening project which will be relaunched and aimed to cover 30-40% of babies. Health policy plays a huge role in determining the day-to-day lives of children, families, and health professiona...