hrp0094p1-104 | Adrenal B | ESPE2021

”Cortison-loop” is an educational tool, which helps ensure the quality of care for children with adrenal insufficiency.

Ernstsson Camilla , Renholm Petra , Molin AEsa , Ellerth Ebba , Lundberg Elena ,

Background: Adrenal insufficiency is a severe condition, which occurs for numerous different reasons. Diseases often require a period or even a lifelong treatment of cortisone and/or mineralocorticoid. Ensuring that families of patients who suffer from adrenal insufficiency have a high level of understanding and knowledge of the disease from the outset is key to them comprehending the severity of the disease, which in turn increases the chances of good complia...

hrp0094p2-270 | Growth hormone and IGFs | ESPE2021

Unified training materials to improve adherence to GH-treatment

Lundberg Elena , Renholm Petra , Molin AEsa , Ellerth Ebba , Ernstsson Camilla ,

Background: Since the 1980s, growth hormone (GH) treatment has been administered to children as daily subcutaneous (SC) injections. GH-treatment is extremely costly, and requires a high level of training and education, otherwise there is a risk of a poor response to treatment by the patient. This can lead to a waste of time and money for the family. The key to good adherence and successful treatment is patient understanding of the growth/metabolic problem and ...

hrp0098p2-215 | Pituitary, Neuroendocrinology and Puberty | ESPE2024

Transition-loop, an educational tool that helps to provide a smooth transition to adult care for the youngster with chronic conditions. “Before transition from adolescent care to adult care - necessary considerations”

Ernstsson Camilla , Renholm Petra , Johansson Karin , Falk Anette , Larsson Carina , Lundberg Elena

Background: Adolescents with chronic disease need to develop independent self-care and learn to communicate effectively with their health care team in transition from pediatric to adult- health care systems. Older adolescents are going through many challenges related to physical and emotional development, education and career choices, family, and peer relationships. The presence of a chronic disease adds an additional burden. At this stage of development, tran...