hrp0097p2-42 | Adrenals and HPA Axis | ESPE2023
Utari Agustini
, Dewi Ariani Mahayu
, Galih Panunggal Damianus
, L Claahsen-van Der Grinten Hedi
, MH Faradz Sultana
, Ediati Annastasia
Keywords: Congenital Adrenal Hyperplasia, Parent’s experience, Focus Group DiscussionBackground: Congenital Adrenal Hyperplasia (CAH) leads to many unseen social burdens for parents, including ambiguous genitalia (in girls), lifelong use of medication, including stress dosing, social and psychological pressure, and stigmatization. This study aimed to investigate various lived experiences of parents caring for their...