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hrp0097p2-14 | Growth and Syndromes | ESPE2023

Unmet needs and challenges experienced by patients with growth disorders and their caregivers: A patient expert view.

Thomas Marc , Harvey Jamie , Kocabicak Sergül

Background: The diagnosis, treatment, and management of growth disorders can have a substantial burden on patients and caregivers. Research was conducted with patient experts to understand challenges experienced by patients with growth disorders and their caregivers, and identify opportunities to improve care.Methods: A mixed-methods approach was used to obtain insights from patient experts between October 2022-January 2...

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hrp0097p1-323 | Growth and Syndromes | ESPE2023

A systematic review of core outcomes reported in clinical trials of growth hormone therapy in children with growth hormone deficiency

Tseretopoulou Xanthippi , Lucas-Herald Angela , Chen Jiajia , Bachega Tania , Charmandari Evangelia , Choi Jin-Ho , Dou Xinyu , Gong Chunxiu , Hamza Rasha , Harvey Jamie , R. Hoffman Andrew , Horikawa Reiko , Johannsson Gudmundur , Jorge Alexander , S. Miller Bradley , Roehrich Sebastian , Sävendahl Lars , Vitali Diana , Wajnrajch Michael , Ching Chen Suet , Faisal Ahmed Syed

Introduction: Although the safety and effectiveness of recombinant human growth hormone therapy (rhGH) has been reported for several years, the level of consensus on the outcomes that should be reported is unclear. The aim of this systematic review is to study the frequency of reporting of these outcomes in children with GH deficiency (GHD).Methods: A systematic review was performed in Medline, Embase, Cochrane Central R...

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Unmet needs and challenges experienced by patients with growth disorders and their caregivers: A patient expert view.

A systematic review of core outcomes reported in clinical trials of growth hormone therapy in children with growth hormone deficiency

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