hrp0084s3.2 | Disorders of sex development: An update | ESPE2015

Decision Making in DSD: Development of a Decision Support Tool

Sandberg David , Callens Nina , Siminoff Laura

Background: Disorders/differences of sex development (DSD) differ from other rare conditions which are often accompanied by significant morbidity and mortality. With limited exceptions, DSD are not life-threatening and do not predict a given level of physical health or health-related quality of life across the lifespan. The birth of a child with DSD is anxiety-provoking. Stressors include weathering drawn-out diagnostic testing, difficulty absorbing complex medical information...