Awareness and Participation in Rare Disease Registries Within the European Reference Network on Rare Endocrine Conditions (Endo-ERN)
aDevelopmental Endocrinology Research Group, School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, UK; bOffice for Rare Conditions, Royal Hospital for Children and Queen Elizabeth University Hospital, Glasgow, UK; cDepartment of Paediatric Endocrinology, Ghent University, Ghent, Belgium; dDepartment of Endocrinology, William Harvey Research Institute, Barts and the London School of Medicine, Queen Mary University of London, London, UK; eDutch Adrenal Society, tHarde, Netherlands; fNational Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy; gMed. Klinik und Poliklinik IV, Klinikum der Universität München, Munich, Germany; hDiabetes Center AUF DER BULT, Hannover, Germany; iUCL GOS Institute of Child Health, 30 Guilford Street, London, UK; jDepartments of Internal Medicine and Clinical Epidemiology, Leiden University Medical Centre, Leiden, Netherlands; kAPHP, Bicêtre Paris Sud, le Kremlin Bicêtre, Paris, France; lAPHP, Hôpitaux Universitaires Paris Est (AP-HP) Hôpital des Enfants Armand Trousseau, Paris, France; mPediatric Endocrinology, Karolinska University Hospital, S-17176, Stockholm, Sweden; nEndocrine Genetic Laboratory, Semmelweis University, Budapest, Hungary; oDivision of Endocrine and Metabolic Diseases, Istituto Auxologico Italiano, Milan, Italy; pDepartment of Clinical Sciences and Community Health, University of Milan, Milan, Italy; qMotol University Hospital, Prague, Czech Republic; rAcademic Centre for Thyroid Diseases, Erasmus Medical Centre, Rotterdam, Netherlands; sDivision of Paediatric Endocrinology and Diabetes, Department of Paediatrics and Adolescent Medicine, University of Lübeck, Lübeck, Germany; tDepartment of Medicine, Division of Endocrinology, Leiden University Medical Center, Leiden, Netherlands
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