The outcome of ongoing adult endocrine engagement following transition from paediatric care

Chai Xin Yean; Lucas-Herald Angela K; Ahmed S Faisal; Chen Suet Ching; Avril Mason; Wong Sze Choong; Colin Perry; Shaikh M Guftar

P3-182

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ESPE Abstracts (2024) 98 P3-182

ESPE2024 Poster Category 3 Multisystem Endocrine Disorders (11 abstracts)

The outcome of ongoing adult endocrine engagement following transition from paediatric care

Xin Yean Chai ^1,2 , Angela K Lucas-Herald ^1,2 , S. Faisal Ahmed ^1,2 , Suet Ching Chen ^1,2 , Avril Mason ¹ , Sze Choong Wong ^1,3 , Colin Perry ⁴ & M Guftar Shaikh ^1,2

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Author affiliations

¹Department of Paediatric Endocrinology, Royal Hospital for Children, Glasgow, United Kingdom. ²Developmental Paediatric Endocrinology Research Group, School of School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, United Kingdom. ³Department of Human Nutrition, School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, United Kingdom. ⁴Department of Endocrinology, Queen Elizabeth University Hospital, Glasgow, United Kingdom

Objective: Transition is important for continuity of care for patients with chronic health conditions. The aimof this research was to evaluate the effectiveness of a transition clinic at a tertiary hospital in long term adult service attendance.

Design: Retrospective case notes review of patients seen by paediatric endocrinology at the time of transition to adult services.

Measurements: Engagement was measured through clinic attendance rate. The "dropped out patients" were those with a transition plan of remaining at the same tertiary centre or transferring to other endocrine centres who did not attend appointments in the adult service.

Results: Of the 267 individuals offered a transition clinic, data were available for 248 (94%). Of these, 52% (n = 129) remained in the same tertiary centre, 29% (n = 71) were transferred to other endocrine centres; 17% (n = 42) were discharged to primary care and 2% (n = 6) died during the transition period. Overall, 91% (182/200) of young patients remained engaged with the adult service. Male patients had reduced clinic attendance post-transition compared to females (68% attendance vs. 75%, P = 0.04). Those from more deprived areas also had lower attendance rates compared to those from more affluent areas (60% vs. 76%, P = 0.004).

Conclusion: Our clinic model for transitioning from paediatric to adult endocrine care is effective in introducing and retaining patients to the adult service with only a 9% drop out rate. Factors associated with poor attendance in adult services include deprivation and being male. Additional support maybe required for these individuals to improve engagement in adult services.