ESPE2024 Poster Category 3 Multisystem Endocrine Disorders (11 abstracts)
The outcome of ongoing adult endocrine engagement following transition from paediatric care
Xin Yean Chai 1,2 , Angela K Lucas-Herald 1,2 , S. Faisal Ahmed 1,2 , Suet Ching Chen 1,2 , Avril Mason 1 , Sze Choong Wong 1,3 , Colin Perry 4 & M Guftar Shaikh 1,2
1Department of Paediatric Endocrinology, Royal Hospital for Children, Glasgow, United Kingdom. 2Developmental Paediatric Endocrinology Research Group, School of School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, United Kingdom. 3Department of Human Nutrition, School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, United Kingdom. 4Department of Endocrinology, Queen Elizabeth University Hospital, Glasgow, United Kingdom
Objective: Transition is important for continuity of care for patients with chronic health conditions. The aimof this research was to evaluate the effectiveness of a transition clinic at a tertiary hospital in long term adult service attendance.
Design: Retrospective case notes review of patients seen by paediatric endocrinology at the time of transition to adult services.
Measurements: Engagement was measured through clinic attendance rate. The "dropped out patients" were those with a transition plan of remaining at the same tertiary centre or transferring to other endocrine centres who did not attend appointments in the adult service.
Results: Of the 267 individuals offered a transition clinic, data were available for 248 (94%). Of these, 52% (n = 129) remained in the same tertiary centre, 29% (n = 71) were transferred to other endocrine centres; 17% (n = 42) were discharged to primary care and 2% (n = 6) died during the transition period. Overall, 91% (182/200) of young patients remained engaged with the adult service. Male patients had reduced clinic attendance post-transition compared to females (68% attendance vs. 75%, P = 0.04). Those from more deprived areas also had lower attendance rates compared to those from more affluent areas (60% vs. 76%, P = 0.004).
Conclusion: Our clinic model for transitioning from paediatric to adult endocrine care is effective in introducing and retaining patients to the adult service with only a 9% drop out rate. Factors associated with poor attendance in adult services include deprivation and being male. Additional support maybe required for these individuals to improve engagement in adult services.
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