ESPE Abstracts

Background: The prevalence of type 2 diabetes mellitus (T2DM) in children and young people (CYP) is increasing in the United Kingdom and worldwide. There is a lack of evidence of patient and parent opinions of the care provided in T2DM and how care should be tailored to meet their needs. The aim of this study was to analyse the Parent and Patient Reported Experience Measures (PREM) survey responses specifically from patients with T2DM and their families in order to inform care.

Methods: The National Paediatric Diabetes Audit (NPDA) PREM survey was available online between 2 August 2021 and 2 January 2022 for all CYP under the care of paediatric diabetes services in England and Wales and their families. The data has previously been analysed collectively for all types of diabetes, however we analysed the data for patients living with type 2 diabetes separately.

Results: 9.2% (105/1144) of young people living with T2DM in England and Wales, and 5.7% (65/1144) parents or carers of CYP with T2DM, responded to the NPDA PREM survey. The majority were aged between 12-16 years (61.9%) and female (67.6%). Most patients and parents felt they had a positive relationship with, and were supported by, their diabetes team. 87% patients and 95% carers said that they would recommend their diabetes team, and 76% of patients felt happy after appointments. 78% of parents and carers felt the diabetes team was respectful of their religious and/or cultural beliefs. 51% of CYP felt they were given enough information to effectively manage their emotional wellbeing. Only 55% of patients and 57% of parents felt well prepared for transition to adult care. Only 38% of patients felt that their schools or college always had the necessary information provided by their diabetes teams to support them with their diabetes, compared to 60% of CYP with all types of diabetes. 71% of parents and carers felt that they are always kept up-to-date with new diabetes technology.

Conclusions: Overall, there are many positive aspects of how CYP and their parents and carers are experiencing care for T2DM currently. However, we have identified areas in which there was less satisfaction, such as T2DM specific information, especially for schools, preparing for transition, support with emotional well-being and parent experience of culturally respectful care. These aspects should be considered when planning patient-centred services for CYP with T2DM in order to improve patient experience and long-term outcomes.