ESPE Abstracts

Background: A robust and meaningful transition pathway helps to prepare young people (YP) for the move from children and YP's services to the adult setting. This can prevent YP from being lost to follow-up and improve long-term health outcomes. Healthcare “transition” describes the process of preparing, planning and moving YP from paediatric to adult services. This should be a gradual process, to enable the YP, and those involved in their care, to feel adequately prepared, and successfully move to adult services. Transition planning should allow time to consider what their healthcare needs as an adult might be and help set realistic expectations of adult services (NICE, 2016). University College London Hospital (UCLH) offers unique Adolescent inpatient and outpatient services (13-19 years). We are continually working to improve young people's focused care.

Aim: This project describes a newly established monthly nurse-led transition clinic. The aim of this project was to better understand the needs of our patients regarding preparation for transition to adult services.

Method: In this pilot clinic, we limited the cohort to patients who had a diagnosis of Congenital Adrenal Hyperplasia (CAH), aged 12-17 years. This was to allow time to have repeated transition reviews every 6-12 months to complete the different stages of the programme. The clinic model followed the “Ready, Steady, Go (RSG)” transition programme. This aims to support YP to gain the skills, knowledge and confidence to manage their conditions. This allows time to have repeated transition reviews every 6-12 months to complete the different stages of the programme.

Evaluation: QR code to gain feedback and ensure PPIE

Challenges: The pilot encountered several problems including:

Clinic and nursing capacity

Young people engagement

Clinician engagement

Age of transition into UCLH

Successes: Preliminary findings PPIE response

Conclusion and next steps

Overall positive response from young people, their families and staff. We are now looking to expand the pilot further and improve the method of evaluation.