ESPE2021 ePoster Category 2 Fat, metabolism and obesity (59 abstracts)
Global survey study of awareness, care and treatment of adolescents living with obesity, their caregivers and healthcare professionals: ACTION Teens
Jason C.G. Halford 1 , Louise Baur 2 , Abdullah Bereket 3 , Bassam Bin-Abbas 4 , Walter Chen 5 , Fernando Fernandez-Aranda 6 , Nayely Garibay-Nieto 7 , Juan Pedro López Siguero 8 , Claudio Maffeis 9 , Vicki Mooney 10 , Cynthia Karenina Osorto 11 , Ricardo Reynoso 12 , Young-Jun Rhie 13 & Martin Toro-Ramos 14
1School of Psychology, University of Leeds, Leeds, United Kingdom; 2Children’s Hospital Westmead Clinical School, The University of Sydney, New South Wales, Australia; 3Department of Pediatric Endocrinology and Diabetes, Marmara University School of Medicine, Istanbul, Turkey; 4Department of Paediatrics, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia; 5Children’s Hospital, China Medical University, Taichung, Taiwan; 6Department of Psychiatry, University Hospital of Bellvitge-IDIBELL and CIBEROBN, Barcelona, Spain; 7Pediatric Obesity Clinic and Wellness Unit, Hospital General de México "Dr. Eduardo Liceaga", Mexico City, Mexico; 8Pediatric Endocrinology Unit, Regional University Hospital, Malaga, Spain; 9Department of Surgery, Dentistry, Gynecology and Pediatrics, Section of Pediatric Diabetes and Metabolism, University of Verona, Verona, Italy; 10The European Coalition for People Living with Obesity (EASO ECPO), Dublin, Ireland; 11Novo Nordisk A/S, Copenhagen, Denmark; 12Novo Nordisk Health Care AG, Zürich, Switzerland; 13Department of Pediatrics, Korea University College of Medicine, Seoul, Republic of Korea; 14IPS Universitaria – Universidad de Antioquia, Medellin, Colombia; Obesity, Dysmetabolism & Sport Centre (COD2) – AUNA – Las Américas Clinic, Medellin, Colombia
Background: Obesity rates in children and adolescents have increased dramatically across the globe, and the lifelong impact of obesity is more severe when onset begins at ≤20 years of age. However, the experiences, challenges and needs of adolescents living with obesity (ALwO), their caregivers, and the healthcare providers (HCPs) who treat them are poorly understood. ACTION Teens, the first study of its kind, aims to improve the lives of ALwO by generating evidence to drive awareness around the needs of ALwO and caregivers, and to identify areas of misalignment between ALwO, caregivers and HCPs.
Methods: ACTION Teens is a quantitative survey-based study currently collecting data in ten countries (Australia, Colombia, Italy, Korea, Mexico, Saudi Arabia, Spain, Taiwan, Turkey and United Kingdom). The study includes ALwO and their caregivers, as well as HCPs with direct, recent experience of clinical obesity management in adolescents. The survey, designed with guidance from an international steering committee consisting of HCPs and subject matter experts, focuses on several aspects of obesity care. Questions consider attitudes and perceptions about obesity and its impact; weight loss attempts, and motivations and barriers to losing weight; patterns of weight loss conversations; ALwO and caregiver interactions with HCPs about obesity; sources of information used to learn about obesity and weight management; sociodemographics of participants; and overall health and well-being of ALwO. The study is targeting 6,150 ALwO, 6,150 caregivers, and 2,300 HCPs with separate, though overlapping, surveys. Sample sizes were selected to reflect the size of the population of ALwO in each country. To maximise the inclusion of ‘matched pairs’ of an ALwO and their specific caregiver, permission will be sought from qualifying caregivers for the relevant child to be involved. The study has been designed to address several specific needs of the ALwO population. Age-specific definitions of obesity were used, most frequently a BMI ≥95th percentile for age and sex, per locally appropriate definitions. Assessment of pubertal stage would have been desirable to evaluate its impact on survey outcomes, but this would not be achievable without inclusion of potentially culturally inappropriate questions. Therefore, a proxy of age subgroups was considered appropriate by the steering committee. Among HCPs, objective rather than subjective criteria to identify advanced formal obesity training were used to reduce false positives.
Results: Study results will be reported in 2022.
Conclusions: ACTION Teens will provide critical global insights to improve awareness of management, treatment and support for ALwO.
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