hrp0095p1-504 | GH and IGFs | ESPE2022

easypod® Augmented Reality: Usability and acceptability of a virtual reality mobile solution to support training of patients on a connected injection device

Mericq Veronica , Kariyawasam Dulanjalee , Iñiguez German , PolakVeronica Mericq Michel , Kariyawasam Dulanjalee , Iñiguez German , PolakVeronica Mericq Michel , Kariyawasam Dulanjalee , Iñiguez German , PolakVeronica Mericq Michel , Kariyawasam Dulanjalee , Iñiguez German , Polak Michel

Background: Smartphones are becoming increasingly popular and powerful across the globe, which, in turn, has provided unforeseen opportunities in the digital health space. The increased capabilities of smartphones have allowed the incorporation of Augmented Reality (AR) capabilities that merge input from their cameras with additional, augmented annotations and representations. While there has been research on the use of AR in managing paediatric diabetes,1 to ...

hrp0084p2-284 | Diabetes | ESPE2015

In-Patient Care for Children with Type 1 Diabetes – A Regional Audit in the Yorkshire and Humber Region in the North of England

Uday Suma , Amin Nadia , Campbell Fiona , Yong James

Introduction: An important part of diabetes management is maintaining high standards of in-patient care. A previous audit in the South of England demonstrated difficulties consistently achieving standards identified as good practice.Objectives: To identify variations in in-patient care provided to children with type 1 diabetes across the Yorkshire and Humber region.Methods: The audit was conducted against in-patient care standards ...

hrp0095p1-522 | Growth and Syndromes | ESPE2022

Positive impact of the TuiTek® patient support programme on caregivers of patients receiving treatment for growth hormone deficiency in Argentina

Sordelli Micaela , Debicki Matías , Gonzalez Judit , María Sosa Ana , Hernán Cejas Leopoldo , Ginaca Romina , Jheeta Amrit , Malik Sumaira , Koledova Ekaterina , Assefi Aria

Background: Good adherence to recombinant human growth hormone (r-hGH) is crucial to achieve optimal growth outcomes in children with GH deficiency (GHD). Controlling factors that negatively impact adherence is difficult in clinical practice. In order to obtain a better understanding of caregiver behaviour, an Argentinian patient support programme (PSP) implemented TuiTek®, a personalised programme comprising behavioural change training, call guides...

hrp0082p2-d3-446 | Growth Hormone (2) | ESPE2014

Evaluation of the Safety and Usability of FlexPro® 30 mg/3 ml, for the Delivery of Norditropin® in Patients Requiring GH Therapy

Fuchs Gitte Schoning , Wen Yanhong , Klinck Rasmus , Qvist Marianne , Kappelgaard Anne-Marie

Introduction: This test assessed the safety and usability of FlexPro® 30 mg/3 ml (Novo Nordisk A/S, Denmark), a pen-injector for injection of human GH in patients with GH deficiency (GHD), Turner syndrome (TS), Noonan syndrome (NS) and children born small for gestational age (SGA), and validated the instructions for use (IFU) and instructional video.Methods: Children with GHD/SGA or TS/NS, adult patients, caregivers of patients with GHD/S...

hrp0086wg7.2 | ESPE Paediatric Endocrine Nurse Specialists and Allied Health Professionals Working Group (PENS) | ESPE2016

The Activities of AdrenalNET and the Paedeatric Emergency Card for Europe

Beun Johan

BijnierNET/AdrenalNET: AdrenalNET is the result of collaboration in the domain of adrenal gland disorders between healthcare providers, patients, nurses and informal carers. An extremely good modus of cooperation has developed between the endocrinologists at all the Dutch university medical centers and ten of the top teaching hospitals, the patient association (Adrenal Society NVACP) and the National Working Group of Endocrine Nurses (LWEV).The mission: ...

hrp0082wg7.2 | Nurses | ESPE2014

Evolving GH Therapy Patient Training in a Digital World

Asher Galit

Introduction: In recent years there have been rapid advances in modern communication technologies that have reached almost every child in the western world. The ways children interact and consume new information have changed in the digital age. Yet, most of the GH patients’ training is based on a face to face interaction using written materials.Aims: To increase patients’ knowledge, enhance positive feelings and decrease significantly fears of ...

hrp0097rfc10.2 | Fetal, neonatal endocrinology and metabolism (to include hypoglycaemia) & Multisystem endocrine disorders | ESPE2023

Utility of Continuous Glucose Monitoring (CGM) during pancreatic surgery in patients with Congenital Hyperinsulinism

Worthington Sarah , Worth Chris , O'Shea Elaine , Ahmad Sumera , Bowler Matthew , Beauve Benoit , Salomon-Estebanez Maria , Banerjee Indraneel

Introduction: Congenital Hyperinsulinism (CHI) is a rare disease of hypoglycaemia due to excess insulin production. Patients with both focal and diffuse forms of CHI may have severe hypoglycaemia not responsive to medical therapies. Such patients require lesionectomy or subtotal pancreatectomy with a corresponding necessity for enhanced glycaemic monitoring during the peri-operative period. Subcutaneous Continuous Glucose Monitoring (CGM) provides real-time hi...

hrp0095p1-89 | Fetal, Neonatal Endocrinology and Metabolism | ESPE2022

A standard operating procedure for prevention, diagnosis, and management of hypoglycaemia in neonates ≥ 35 weeks of gestation

Roeper Marcia , Hoermann Henrike , Koestner Felix , Salimi Dafsari Roschan , Mayatepek Ertan , Kummer Sebastian , Meissner Thomas

Background: Hypoglycaemia is a common metabolic condition affecting up to 15% of all neonates and 50% of neonates with risk factors including diabetic mothers, large or small for gestational age, perinatal stress, or prematurity. It is well known that severe and prolonged hypoglycaemia, as commonly seen in congenital hyperinsulinism, can lead to brain injury. However, data on the effect of mild neonatal hypoglycaemia on neurodevelopment are limited. There is s...

hrp0095p2-89 | Diabetes and Insulin | ESPE2022

Design, certification and evaluation of an Insulin Infusion Therapy Care and Education Program (PAETII) in children/adolescents in a Pediatric Unit

J. Chueca Maria , Gabari Mercedes , Burillo Elisabeth , Berrade Sara , Herrero Sara , Francisco Laura , Lopez de Dicastillo Ana , Andres Carlos

A structured program of therapeutic education is essential to achieve a good result from the use of technology in the treatment of diabetes.Objectives: Facilitate knowledge, skills and aptitudes to patients and their families in therapy. Promote the capacity for self-management and adherence to treatment. Provide ongoing support to patients. Improve clinical outcomes, health status and quality of life.Metho...

hrp0092p1-38 | Diabetes and Insulin | ESPE2019

The Factors Associated with High Levels of HbA1C in Children and Young People with Type 1 Diabetes Mellitus

Ayoola Omolola , Kendall Deborah

Introduction: Patients with diabetes are encouraged to achieve good glycaemic control to reduce the risks of complications. Many factors are associated with glycaemic control.The objective of this study was to evaluate factors associated with good glycaemic control among a cohort of children and young people with type 1 diabetes in Lancashire United kingdom.Methods: All children and young people wi...